Monday 2 April 2012

First Post!


Hello new readers!  Welcome to the first post of my brand-new blog, the intention of which is to chronicle our family's adventure through the ups and downs of living with - and overcoming - severe visual impairment. Let me take a moment to introduce myself. I'm Dee, a thirtysomething mama of two fantastic kiddos. J is nearly five, and will be the primary focus of this blog. He was born with a congenital eye condition that as yet has no specific name, rather it is an amalgam of many other conditions. I have the same thing. K is nearly eighteen months old, and as yet has nothing unusual about her eyes, save for an optic nerve pit which is being monitored, and will be every year for the rest of her life. Despite any challenges, they are amazing, fun little creatures that fill our days with smiles and fun.

Hubby, who will probably be known simply as "Daddy" on this blog, is the breadwinner of the house, the other half of my heart, and the greatest man I have ever known. He's an amazing father, and never let's me get too down on myself when things seem at their darkest. We're coming up on seven years of togetherness, six years of marriage.  Best seven years of my life.

Now, back to J. He has so much support. He has been in one therapy or another since he was five months old, and currently has Speech Therapy (ST) and Occupational Therapy (OT). His therapists are incredible, and have helped him overcome what have seemed to be HUGE obstacles. He'll actually be seeing his OT this afternoon. She's a patient, soft spoken woman who manages to push J past his comfort zone at every session, without a fight. K comes along with us, and she seems to be benefiting just as much as he is.

J is in preschool, three days a week. He has an aide who works one on one with him, who also happens to own the school. Preschool has changed his life in so many ways.

Anyway, that's all I can squeeze in for now. Baby's asleep and J is clamouring for some Mommy time. See you soon!

~Dee~

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